Rory – 19 Weeks corrected

For the first time in a long time, Rory had no medical appointments this week. What’s more it’s starting to shape up that we only have appointments every second week for the next while so hopefully they just continue to get less frequent.

In the absence of appointments, we had quite a social week. We started out with lunch on Saturday at Shona, Finn & Maggies’ place.

   

  

On Sunday, Rory had his lunch and then we joined Colman, Andrew & Granda Con for lunch at the golf club where Rory enjoyed the view of the green fairways out the windows!

   

 

Monday morning we headed to Centennial Park for a catch up and walk with Rory’s premmie buddy Kai. It was a beautiful sunny morning and both boys enjoyed the outdoors and checking each other out. They went on to both be weighed in just over 5kg this week! (It looks like Kai is sitting unsupported below but his mum has his back)

   

    

Rory continued to enjoy his solids this week.

 

 

And reading too with “where is the Green Sheep” being a favourite! (The pic with me was taken unbeknownst to both of us very early one morning hence Rory still has his prongs on & I’m in a dressing gown!)

   

 

Mostly though Rory enjoyed lots of play time with Nana Phil & Granda Con and enjoyed lunch with them at the Boatshed in La Perouse (on Botany Bay). They also stopped by parliament with Colman (last pic).

   

          

 

Rory was sorry to see Nana & Granda fly out this morning but had a really fun few weeks with them and will see them again on Skype really soon. We’ve also noticed that he’s vocalising a lot more after having so many voices around over the past month (no noticeable Cork accent just yet). Here he is chilling with Nana.

  

 And finally Rory wanted to wish a very happy birthday to his great granny, Nan for today along with wishing a happy anniversary to Granny & Grandad in Dublin!

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Rory is 5kg!

Rory weighed in today at 5.05kg and is delighted with the result! That’s two kilos he’s put on since the start of Jan!

He thought his cousin Liam might appreciate the onesie he’s wearing today after being a big Thomas fan himself! He must have taken some growth inspiration from Liam today as his tallest cousin!

  

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Rory – 18 Weeks corrected.

Rory is 18 weeks corrected today.  I should acknowledge that it is getting a little bit tricky with the weeks & months corrected at this point as he was just 4 months corrected on 14th March (last weekend) but looking at the weeks, it seems like he’s 4.5 months!  For medical appointments they’re now using months as the guide but until I can figure out a better title for blog posts, I think we’ll stick with weeks! Anyway because Rory is now four months corrected, he had his first appointment at the Growth and Development clinic.  The Growth and Development team see babies who were born 29 weeks or less premature or of birth weights of less than 1000g so Rory qualifies on both counts! The idea is that they see him at 4 months, 8 months, 1 year and 3 years corrected and then at 5 and 7 years old and through various tests ascertain how Rory is tracking against a full term baby. If he requires any assistance, they then direct you to those services.  I must say amongst parents of prem babies, this is built up to be a big check up but we were left a little underwhelmed!  I think because we’ve been tracking Rory’s progress so closely and because we’ve been seeing a paediatrician and physiotherapist, there wasn’t much more this team could tell us, particularly as at this point there’s not much formalised testing that can be done (which is a feature of the later check ups). Thankfully Rory is developing really well and they were happy that he’s doing what a four month old should so we can’t ask for much more than that!

On St Patrick’s Day, Rory went back to see his respiratory specialist post sleep study who pretty much agreed with the sleep team that Rory needs to stay on his oxygen until we do another study in May.  He reiterated that it’s not unusual for a premature baby to still have this issue and he’d be hopeful that it would be resolved/resolving by the time of the next sleep study.  Weightwise Rory weighed in at 4.92kg on Tuesday and 4.96kg on Thursday so we are edging towards the 5kg mark!

Otherwise Rory started off the week by going to his premmie pal Archie’s christening. Before we got there though we popped in to Royal Randwick shopping centre where the Running for Premature Babies organiser was trying to sign up some more runners and we thought Rory might be a little drawcard at her stand! She was delighted to see us and had actually just signed up an ex-28 weeker born in the late 70’s who is now an astro-physicist!

Onto the christening and Archie chose another venue with a view for his celebratory lunch which was in North Bondi. Rory had a lot of fun in the church but you can tell it was time to go by the time the group shot came around! Archie is doing great by the way and has just cracked 5kg!

A lot of this week was about new tastes and foods for Rory. In the vegetable category, he enjoyed some carrot and sweet potato.

For fruit, he had pear and apple (my own mum will be glad to know I ate both while preparing for Rory)! He really seems to be enjoying the different tastes with his main complaint being I’m too slow with the spoon!

And in a blog first here’s a video (I hope!) of Rory eating some apple. This is the first video on the blog for reasons that would only interest fellow bloggers. It still isn’t as smooth a process as I would like but hopefully it won’t be the last!

Separate to food, Rory continues to enjoy his thumb even finding it during tummy time (Colman was sitting right behind him by the way)!

We’ve had one of the reclining deck chairs set up under an umbrella while we’ve had visitors. It reminded Rory and I of our kangaroo care days and in particular how tricky it always was to take selfies during it… Even more so now with a squirmy giant baby!

Finally Rory wanted to say happy birthday to his cousins Aine & Sinead this week! He can’t wait to see them in August!

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Happy St Patrick’s Day

Happy St Patrick’s Day everyone and a special thanks to Aunty Mena for Rory’s leprechaun outfit! It’s way too big for him but won’t be for long as he weighed in today at 4.92kg. 





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Rory – 17 Weeks corrected

Rory had a busy week post christening. The main reason was that he got in for a sleep study as someone else had cancelled. The purpose of the sleep study was to give us a bit more information on Rory’s breathing and oxygen requirements so on Tuesday, Rory and I headed back to the hospital for the night. First up was a weigh in and he came in at 4.82kg (150g in the past week which is right on target). Then the nurses started attaching more wires to Rory than we’ve ever seen on him (and that’s saying something). There were wires to monitor breathing, eye movement, brain activity, breathing rate through his mouth and nose, how much his chest and abdomen rise and fall etc etc. It’s gotta be said Rory tolerated the whole process very well with lots of smiles for the nurses. 



Once Rory was settling down for the night he got his usual prongs attached and all the wires plugged in. The nurses also turned on the video and sound recorder. Breastfeeding him & settling him to sleep was a challenge handling-wise but once down he only woke once through the night when a machine broke that the nurses had to come in to our room to fix. Again he had smiles for us first thing. 



The upshot of all the tests was that Rory still needs the oxygen he’s on when he’s in a deep sleep (REM sleep). He still has occasions where he’s forgetting to breathe. While that sounds alarming, it’s quite common for even term babies and basically the control centre for breathing in his brain needs to mature another little bit. While he has quite a few of these episodes when off oxygen, the tiny bit of oxygen that he is on completely resolves the problem for him. So for now he needs to stay on the same amount of oxygen at night and for his big nap through the day and we’ll do another sleep study when he’s bigger in May. 

Rory was a champ throughout the sleep study process although the smiles decreased when it was time to take all that tape off and in particular get the chewing gum/paste-like substance off his head… It was his longest bath ever and we were happy when Granda Con & Nana Phil arrived just afterwards to distract us from it all! It seemed like an appropriate time to wear his Mr Strong top!



It was a sticky kind of week really as Rory started helping with his bottle. He only gets a bottle with his probiotics (on the teat) which are very sticky so soon there was sticky stuff everywhere!



Rory has also really got into sticking his thumb in his mouth & it really has become a constant companion this week!



The final sticky thing of the week was solids that Rory just had this afternoon for the first time! He did really well and actually took a lot of puréed carrot!

Although this morning it seemed he was more interested in going back on caffeine when he knocked his bottle directly into my coffee glass!



Other than all that stickiness, Rory enjoyed all his favourite things including cuddles, chatting, tummy time and playing with his toys





And a new favourite… Reading! He’s smiling lots at his black and white books now!





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International celebrations

Just a quick post to note that Rory’s christening was not just celebrated in Sydney! Cindy & Miles celebratedwith aussie ginger beer in Chicago



While in Dublin, the Kennys had a candle lit  and a special mention for Rory in mass followed by a get-together in Lutttellstown! Rory feels very lucky to have his special day marked world wide!







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More christening party pics 

I have LOTS of great christening party pics so it’s a challenge to pick out the best of them but I’ll give it a go!

First up the venue which was at the surf club at Maroubra beach. Why this isn’t a permanent bar is a bit unclear but it was great to have such surf side views as a backdrop.









There was the usual O’Driscoll antics at photo-time.





Meanwhile back of house we had Andrew & Jacinta cooking up a storm ably assisted by their kids and Andrew’s parents!









Keeping with the food theme, I’m sure you all noticed the sylvanian family rabbit on the cake (a follow on from our wedding cake) and Rory’s hospital elephants were alongside it.





Speaking of the hospital, a lot of Rory’s premmie friends came along all looking a lot bigger and stronger!





All the usual suspects were there of course…







And friends we don’t get to see as often.





Our friends Richard & Amy came along and I thought we should get a pic of Richard and Rory as Rory has Richards Rugby World  Cup Jersey framed in his room.



Kathleen, Cyril, Fiona and Gary came along from the Andrew family.





And we were also joined by most of Colman’s office.



Lots of whom are running for Rory in the half marathon… Here’s almost the full team!



There was a big room out back which was perfect for all the kids to run and jump around in.



We did get the kids into the main room for a picture with Rory & the cake!













All in all it was a really fun day and the three of us really enjoyed it!





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More christening ceremony pics

Thanks to our photographers, Neil, Noelle and Shona, we have lots more pictures of Rory’s big day. 

Here’s a few more from inside the church.





It’s fair to say that our priest was petty memorable with lots of jokes and movie references throughout!



When he lifted Rory up at the end saying it was just a little thing he liked to add in, there were lots in the crowd  who were reminded of a scene from Lion King! Rory seemed to enjoy it though as he had been getting a small bit hungry towards the end of the service!





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Happy Birthday Daddy!

A little break in christening photos to mark the other celebration of the weekend, Colman’s birthday! Rory always has a smile for his Daddy, including this morning at the beach!





Rory & Daddy also literally hung out together when we went to drop off the remainder of Rory’s christening cake to the NICU nurses this afternoon.



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Rory’s Christening!

There are many more pics to follow but here’s just a few from Rory’s big day! 

































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